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Alberta Organ Donor Question on Tax Returns

Full Title: Organ and Tissue Donor Information Agreement Act

Summary#

  • This bill tells Alberta’s income tax minister to ask the Canada Revenue Agency (CRA) to help collect organ and tissue donor information through tax returns.

  • The goal is to make it easier for people to join or update Alberta’s organ and tissue donor registry.

  • Key points:

    • The minister must make the request to CRA within one year after the law takes effect.
    • If CRA agrees, the minister must sign an agreement so CRA can collect and share donor information from tax returns with Alberta.
    • The agreement would be used to set up or keep Alberta’s donor registry up to date.
    • If the agreement is signed, this law ends automatically.
    • If CRA does not agree, nothing changes.

What it means for you#

  • Alberta residents who file taxes:

    • You could see a new question on your income tax return asking about organ and tissue donation.
    • If you choose to provide information, CRA would pass it to Alberta’s donor registry so your decision is recorded or updated.
    • Details like exactly what information is collected and how consent works would be set in the agreement, not in this bill.
  • People waiting for transplants and their families:

    • Easier sign‑up may increase the number of registered donors, which could help more patients.
    • A more complete registry can speed up matching when time matters.
  • Health system:

    • A larger and more accurate registry could help planning and coordination for donations and transplants.
  • Privacy‑minded individuals:

    • Your tax return may include a new prompt related to health decisions.
    • What is shared, how it is stored, and how you can change your choice would depend on the agreement between Alberta and CRA.
  • Government of Alberta:

    • Must request the agreement within a year.
    • Would receive donor information from CRA if an agreement is reached and must manage it in the provincial registry.

Expenses#

Estimated annual cost: No publicly available information.

  • The bill does not include cost figures.
  • Any costs would depend on the terms of the agreement with CRA (for example, system changes, data sharing, and registry administration).

Proponents' View#

  • Making registration part of tax filing is simple and familiar, so more people are likely to sign up or update their status.
  • A bigger donor pool can save lives and reduce wait times for transplants.
  • Using existing tax forms is a low‑effort way to keep the registry current each year.
  • People keep full choice; this is about convenience, not automatic enrollment.
  • Better data sharing can reduce errors and make sure a person’s wishes are known.

Opponents' View#

  • Tax returns collect financial data; adding health‑related choices may feel intrusive or raise privacy concerns.
  • Sharing information between CRA and the province could worry people who fear misuse or data breaches.
  • The bill does not spell out safeguards, what exact data is shared, or how consent can be changed—those are left to a later agreement.
  • Alberta already has a donor registry; critics may see this as duplicative unless it clearly boosts registrations.
  • Some may prefer different approaches (for example, stronger public education or other sign‑up points) instead of involving tax forms.

Timeline

May 28, 2024

First Reading

May 12, 2025

Second Reading

Healthcare