This House resolution, introduced February 27, 2025 and referred to the House Committee on Energy and Commerce, raises awareness about chordoma, a slow-growing but aggressive bone cancer of the skull and spine. The text says chordoma affects more than 25,000 people worldwide and about 300 people in the United States each year. It notes surgery or radiation can cure some patients but recurrence rates remain high, and no drugs are known to cure or effectively control the disease. The resolution states it is the "sense of the House" that chordoma patients and families need increased funding and support for accurate and early diagnosis; development of new treatments, diagnostics, and cures; fewer hurdles between research and new treatments; and patient-centered approaches to drug discovery and development.
The resolution expresses the House's view and urges more attention and support for people with chordoma. It lists areas where supporters want more help, such as earlier diagnosis and new treatments. The resolution text does not specify any new programs, services, or dollar amounts.
No publicly available information on costs or authorized spending. The resolution calls for increased funding and support but does not set or authorize specific funding levels.
Supporters say chordoma is hard to treat because it involves critical structures like the brain stem and spinal cord, recurrence is common, and no effective drugs are known. They want more funding and support for early and accurate diagnosis, research into new treatments and diagnostics, fewer barriers from research to treatment, and patient-centered drug development.
No publicly available information on opposition or objections in the bill text or provided metadata.