The resolution supports designating May 2, 2025, as NKH Awareness Day and recognizes the importance of raising awareness and improving education about nonketotic hyperglycinemia (NKH), a rare genetic metabolic disorder.
The resolution expresses the House’s support for an awareness day. It does not describe specific services or changes for individuals or families.
No publicly available information.
The resolution states that greater awareness may lead to more research, participation in NKH patient registries, and diagnoses of NKH cases.
No publicly available information.