Veterans with ALS Reporting Act

Summary#

This bill requires the Secretary of Veterans Affairs, in consultation with the Centers for Disease Control and Prevention (CDC), to send Congress a report on amyotrophic lateral sclerosis (ALS) in veterans within one year of enactment. The report must include: an assessment of ALS incidence and prevalence in veterans; a description of resources and support the CDC and VA provide to veterans with ALS; any deficiencies in those resources; a strategy to develop and test risk-reduction approaches to lower ALS incidence and prevalence among veterans; a plan to help veterans receiving ALS care in VA clinics participate in VA-sponsored clinical trials and research; and any recommendations for new legislation. The bill also requires the VA to track ALS prevalence in veterans using the CDC ALS registry and biorepository. The VA must provide an updated report and tracking information three years after enactment and every three years after that.

What it means for you#

If you are a veteran, caregiver, clinician, or researcher, the VA must report to Congress about how common ALS is among veterans, what services and supports are provided, and where gaps exist. The report must describe strategies for reducing ALS risk and for making it easier for veterans in VA care to join VA-sponsored clinical trials. The VA will use the CDC ALS registry and biorepository to track cases and must provide updates every three years.

Expenses#

No publicly available information on costs or funding is included in the bill text. The bill does not include an authorization of appropriations in the text provided.

Proponents' View#

No publicly available information.

Opponents' View#

No publicly available information.