This bill would create a new section in the Public Health Service Act focused on endometriosis. It directs the National Institutes of Health (NIH) to support research, data collection, and an online clearinghouse about endometriosis. The Department of Health and Human Services (HHS) would study barriers people face getting treatment, collect related data from insurers and Medicaid/CHIP, and publish a report within two years. HHS must also run a public education program about endometriosis (including mental health supports and outreach to underserved groups) and share clinical guidance with health care providers. The bill asks HHS to contract with the National Academies to study disparities in endometriosis care and report findings within 24 months.
The bill authorizes specific appropriations: $50,000,000 for each of fiscal years 2026 through 2030 for NIH research and related activities; $2,000,000 per year for fiscal years 2026 through 2030 for a public education program; $2,000,000 per year for fiscal years 2026 through 2030 for dissemination of information to health care providers; and $500,000 to support the National Academies study.
The bill’s sponsors say endometriosis causes severe pain, can make it harder to get pregnant, and has no known cure. Proponents want more research, better data and surveillance, wider public and provider education, and study of access and outcome disparities to improve care and support for affected people.
No publicly available information.